Earlier in May 2024, the spinal CSF leak community lost a bright light when Connie Rim passed away. Her Facebook page, called My CSF Leak Story , was where she detailed her long fight trying to get sealed and healed. A few days after she passed, her husband posted words from Connie about her death, sharing it with the world. Connie sustained her leak 5 years ago during spinal surgery, and tirelessly rallied her body and mind in her attempts to get care and find her way back to a place of less pain. Like me, she found solace in sharing this journey publicly. In her case, via videos that she posted to Facebook and TikTok, detailing her many debilitating symptoms, explaining the procedures and tests she got, and patiently answering questions. When someone is chronically ill and takes a break from treatments, there is inevitably a swell of people asking why. “Why aren’t you doing more?”, as if it’s up to you  to not be better.…