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Open data is key to genomics research — if the information can be kept safe
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Open data is key to genomics research — if the information can be kept safe

www.nature.com·Xu, Shuhua·20 days ago
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Trust is no longer enough: secure data sharing requires international collaboration across institutions and governments. Trust is no longer enough: secure data sharing requires international collaboration across institutions and governments.

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UK Biobank has my data, but I’m not worried. I know the benefits are too great to consider pulling out | Polly Toynbee
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UK Biobank has my data, but I’m not worried. I know the benefits are too great to consider pulling out | Polly Toynbee

Longitudinal studies are a research jewel, shedding light on motor neurone disease, cot deaths, Alzheimer’s and more. Don’t let the security breach in China put you off joining one, says Guardian columnist Polly Toynbee

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UK Biobank’s Endless GitHub Data Leaks: Tracking 110 Takedowns and a Half-Million Records for Sale
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UK Biobank’s Endless GitHub Data Leaks: Tracking 110 Takedowns and a Half-Million Records for Sale

WebProNews·Name·about 1 month ago
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UK Biobank battles repeated GitHub leaks of 500,000 volunteers' health and genetic data, issuing 110 DMCA notices while full datasets surface for sale in China. Oxford researcher Luc Rocher's tracker exposes the scale and risks of re-identification.

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UK: Health data listed for sale on Alibaba in China
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UK: Health data listed for sale on Alibaba in China

dw.com·Mark Hallam·about 1 month ago
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The British government is investigating how health data volunteered to a charity for research purposes wound up for sale via three vendors on the Alibaba e-commerce site in China. One listing had 500,000 people's data.

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